One of my readers, renaissanceguy, made a couple of comments yesterday. In one of them, he made an excellent point. He said,
This blog is amazing, and I applaud you for exposing lies and presenting truth. While I agree with you, I want to urge caution.
You don’t want to give people the impression that no relief is possible. I think that with your heavy emphasis on there not being a cure, at least not yet, you might make people think that they are doomed to find no relief at all.
He’s right. I don’t want to make people think we’re “doomed.” We’re not. In writing this blog, I often write about people claiming they have a “cure” for Migraines. Some of the reasons I write these “cure-busting” posts are:
- Some of these people are making big bucks from selling us information that we can find other places online, FREE.
- Some of them are making money from selling us products, “medical” services, or theories that have not been proven. Some of these even claim to be the “cure” for multiple diseases.
- We all need to know the truth, that Migraine is a disease that can’t be cured yet. There ARE good treatments that can help us live better, easier lives, but we need to know the truth and be realistic.
Let me say this for the record. We are not doomed to live hopeless lives because of Migraines. There are excellent treatments that can both stop Migraines once they start and prevent Migraines. Migraine preventive medications can help make our Migraines less severe, shorter, and less often. The disease cannot be cured, but it can be managed.
Taking renaissanceguy’s comment to heart, I’m going to start doing a different type of post on a regular basis, one that highlights some of the truths I’ve come across recently. After all, we do need to see the positive too, don’t we?
Here are some truths I’ve seen recently:
- From Somebody Heal Me: Percy Harvin’s Situation Exposes Burden of Chronic Migraines
- From Against the ‘Graine: Setting Goals
- From Headache and Migraine News Blog: 1% Thursday, Think 3D
- From the Alliance for Headache Disorders Advocacy: Migraine and Stigma
- From Migraine Blues: Women with Migraine = Drama Queen
- From Migraine Is a Disease: Migraine Triggers, Treatment, Management: Superb Video
There have been a couple of blog entries recently that were about the difficulty of living with Migraines, how they can drive people to the point of suicide, and how to deal with these feelings. This is a tough, but important, topic, so I want to give you links to those too:
- From Migraine & Other Headache Disorders: Migraines and Suicide.
- From Putting Our Heads Together: Migraines, Suffering, Suicide, and Hope.
In closing, I want to thank renaissanceguy again and all the bloggers out there who are sharing the truth.
Have a good weekend!
Best,
Arabella ♥
The October Migraine and Headache Blog Carnival was posted today on Diana Lee’s Somebody Heal Me. The theme for this month is “Alternative Therapies.”
Migraines, Blogging, Attitudes
Posted in Blogs, Migraines, People telling the truth, tagged blog comments, Migraine blogs, Migraine Headaches, Migraines on August 20, 2010 | 5 Comments »
When I started this blog dedicated to the truth about Migraine disease, I knew there would be times when it messed with my peace and tranquility. Times when I’d take a lot of heat for what I said here. I decided I could do it, that I just wouldn’t take things personally. But, because I’ve seen other people sorely abused by the people who become angry with them, I also made a decision. A decision that I would write this blog under a nom de plume, a pen name. I don’t want people emailing me at my personal email address, searching the internet for my home address or phone number, fussing at me on a personal level. A couple of bloggers I asked about this thought it was a great way to keep things from getting too personal. So, although the information on the “about” page is correct, nobody knows my true name.
You may wonder why I’m telling you this now. I’m telling you now because I also want to say a few things about what I blog and how people respond. My goal is to talk about treatments and theories I see online and am concerned about, not the people behind them. To post about writings that are truthful and correct or are mistaken, incorrect, or just old science. But, people take things very personally sometimes, and they lash out at people who write something they don’t like. Because I get so many spammers trying to post comments to this blog, all comments have to be approved by me before they’re published. People who want to comments don’t have to share my thinking or agree with me, but they do have to exercise common courtesy. Nasty comments are not approved; they are deleted along with the spam.
The internet has been great for us. It’s been an explosion of information available, far more than ever before. On the other hand, it has its drawbacks. I’m glad I decided to write under a nom de plums, but dislike the reasons I feel I need to. For all the personal information available, the internet is still very impersonal in a way. People will write things to other people that they’d probably never say to someone’s face. They’ll express anger at a level that would probably considered assault and have people calling the police were they to express it in person.
In the end, this is my blog, and I’ll post or not post comments as I see fit. If you understand that, great! If you don’t understand it or don’t like it, please go read someone else’s blog and just skip mine.
Best,
Arabella ♥
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