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Archive for the ‘Good Migraine Blogs’ Category

When it comes to Migraine truth, nobody tells it better than patient advocate Teri Robert. On her blog at www.PuttingOurHeadsTogether.com, she’s started a new series that I absolutely love – Migraine Pearls or Onions?

She started this feature in late January, and it’s quickly become one I watch for. Here are her “Pearls” and “Onions” so far:

Go, Teri!

‘Nuff said.

Best,
Arabella

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For those of you who experience Migraines, are any of you NOT affected by the stigma attacked to Migraine disease? I doubt it. The stigma is pervasive, even in today’s supposedly better educated and informed society.

We get it at work, at school, even at home and at church.

Now there’s research showing how that stigma affects us. It’s pretty startling, and it’s pretty sad. A new Migraine podcast posted today on www.MigraineCast.com is part one of two about Migraine and stigma. This podcast has two Migraine specialists who conducted the research and are willing to speak openly and honestly about stigma.

For some truth about Migraine and stigma, check out Migraine and Stigma, Part 1, on MigraineCast.

Best,
Arabella

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Last week, I shared that MigraineCast, a great Migraine podcast is back. I just discovered that Teri Robert, who produces MigraineCast, tried something new yesterday. She did MigraineCast’s first video podcast, Migraines, Headaches, and Sleep: A VideoCast.

As soon as I watched it, I emailed Teri to tell her I hope she does more of them. If you love great Migraine information as much as I do, you’ll be interested, so I’ll share part of her reply:

… That particular video wasn’t made with podcasting in mind, so the video quality isn’t as good as I’d like it to be. But, now I know that I can do video podcasts as a part of MigraineCast, I’ll be doing more of them in the future…

That’s good news for all of us!

Best,
Arabella

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There is a vast amount of information about Migraines on the internet. We know that some of it is excellent, and some of it is, bluntly, crap.

Writing only about the bad info and the schemes and scams is taxing and boring. Since the name of this blog is “Migraine Truth,” I reserve the right to break the boredom by writing about truly good information from time to time.

Today is one of those days when I’m going to share a wonderful site with you, MigraineCast. MigraineCast is a site of podcasts about Migraines and related issues. I’ve followed MigraineCast since it first went online in 2007. There hadn’t been any new podcasts for some time, until this week. Wednesday, a new podcast was published, The Migraine Research Foundation and Their Sweepstakes.

I was thrilled to see the podcast was up and listened to it immediately. Quickly, I emailed Teri Robert, the creator and producer of MigraineCast to ask if MigraineCast is coming back on a regular basis. Teri replied:

Yes, Arabella, MigraineCast is back. It’s doubtful that I can keep up with doing weekly podcasts  as I used to, but there will be at least one new podcast per month. I’m going to be doing things a bit differently, and having guests for many of the podcasts. The guests will include Migraine specialists, researchers, people from nonprofit organizations, patients who are on their own journeys toward better Migraine management and more…

YES! This is great news for all of us with Migraines. MigraineCast podcasts have always been excellent, and it’s good to have them back. I hope you’ll visit www.MigraineCast.com and listen to some of the podcasts. You can listen to them directly from MigraineCast.com or find them in iTunes. There are directions on the site.

Best,
Arabella

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blogcarnival125The October Migraine and Headache Blog Carnival was posted today on Diana Lee’s Somebody Heal Me. The theme for this month is “Alternative Therapies.”

The purpose of a blog carnival is to bring together bloggers writing on a common theme or issue, then get their work out there for people to read. Diana does a great job of  putting this carnival together, and it features some top Migraine bloggers.

I hope you’ll take some time to read some great Migraine Truths in this month’s carnival. Alternative Therapies: October 09 Headache Blog Carnival.

Thanks for hosting this carnival and keeping it going, Diana! Is there any way you can work “Migraine” into the title of it?

Best,
Arabella

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It's about timeIt’s about time we had better Migraine treatments. Right? Right!

Most of the time, I post about Migraine sites and blogs that are disappointing, questionable, or wrong.  Today, I want to post about SOMETHING that’s wrong while posting about some sites and people who are great!

One of the reasons we don’t have better treatments is that the burden of research is left on the shoulders of the pharmaceutical companies. The National Institutes of Health (NIH) who should be funding the kind of research that reveals more about the causes of Migraine disease and how Migraines actually work in our brains, funds very, very little research for Migraine diseae or other headache disorders.

ahdalogo1601According to the Alliance for Headache Disorders Advocacy (the AHDA), the NIH expended less than $10 millong in 2006 towards all research on headache disorders, comprising less than one-half of one percent of their budget. The AHDA grew out of a 2007 event called Headache on the Hill. During Headache on the Hill, a group of doctors, researchers, and patient advocates traveled to Washington, DC, to speak to their congress members about NIH funding for Migraine and headache research.

Their work didn’t stop there. The AHDA kept at it, calling on everyone to send emails to their congressmen to get their backing. They also made it really easy! The emails were pre-written, and it only took a few minutes to go to their site and send them.

capitoldome150Later this month, Headache on the Hill will be going on again. As these dedicated people are preparing to brave this cold winter and travel to DC again, they’re also anticipating that they may need to enlist our help soon to send emails to congress again.

Soooooooooo, to get read for that, we all need to be sure we’re signed up to get their email alerts when our help is needed.

Let’s put our fingers where our mouths so often are and register for the AHDA mailing list. To do so, simply CLICK HERE.

Please, register for their mailing list AND ask all of your family and friends to do the same.

To keep up with all the AHDA is doing, as well as other important issues, keep an eye on MyMigraineConnection.com, where author and patient advocate Teri Robert always keeps us up-to-date.

Best,
Arabella♥

Images courtesy of Teri Robert and the Alliance for Headache Disorders Advocacy

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blogcarnival125On the topic of Migraine Truth:

I’ve been focused on discussing inaccurate or disappointing information on the web, but there is a great deal of good, accurate, and worthwhile information out there too. This morning, browsing through Google Alerts, I came across a Headache and Migraine Disease Blog Carnival. This carnival is organized by Diana Lee, the writer of Somebody Heal Me, and this month’s edition marks the carnival’s one-year anniversary.

In case you’re not familiar with blog carnivals, Diana explains:

“Generally speaking, a blog carnival is a collection of links to a variety of a blogs on a central topic. The Headache & Migraine Disease Blog Carnival has been created to provide both headache patients and people who blog about headaches with unique opportunities to share ideas on topics of particular interest and importance to us.”

This month’s carnival topic is “Maximizing Your Enjoyment of the Holiday Season.”

Take a look at Happier Holidays: December 2008 Headache Blog Carnival!

Best,
Arabella

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