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Archive for the ‘Migraines’ Category

Migraines or not, I like peace and tranquility in my life. I tend to be somewhat Zen about things, believing in a higher power and in Karma. What I send out into the universe will be returned to me.

When I started this blog dedicated to the truth about Migraine disease, I knew there would be times when it messed with my peace and tranquility. Times when I’d take a lot of heat for what I said here. I decided I could do it, that I just wouldn’t take things personally. But, because I’ve seen other people sorely abused by the people who become angry with them, I also made a decision. A decision that I would write this blog under a nom de plume, a pen name. I don’t want people emailing me at my personal email address, searching the internet for my home address or phone number, fussing at me on a personal level. A couple of bloggers I asked about this thought it was a great way to keep things from getting too personal. So, although the information on the “about” page is correct, nobody knows my true name.

You may wonder why I’m telling you this now. I’m telling you now because I also want to say a few things about what I blog and how people respond. My goal is to talk about treatments and theories I see online and am concerned about, not the people behind them. To post about writings that are truthful and correct or are mistaken, incorrect, or just old science. But, people take things very personally sometimes, and they lash out at people who write something they don’t like. Because I get so many spammers trying to post comments to this blog, all comments have to be approved by me before they’re published. People who want to comments don’t have to share my thinking or agree with me, but they do have to exercise common courtesy. Nasty comments are not approved; they are deleted along  with the spam.

The internet has been great for us. It’s been an explosion of information available, far more than ever before. On the other hand, it has its drawbacks. I’m glad I decided to write under a nom de plums, but dislike the reasons I feel I need to. For all the personal information available, the internet is still very impersonal in a way. People will write things to other people that they’d probably never say to someone’s face. They’ll express anger at a level that would probably considered assault and have people calling the police were they to express it in person.

In the end, this is my blog, and I’ll post or not post comments as I see fit. If you understand that, great! If you don’t understand it or don’t like it, please go read someone else’s blog and just skip mine.

Best,
Arabella

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So, thanks to Google alerts, I just came across one of the biggest crocks I’ve seen so far. The person who wrote the featured article, Common Myths About Optical Migraine Symptoms*, is either seriously misinformed or delusional.

First, as has been discussed here, the term “optical Migraine” may be used in many places on the internet, but it’s not a form of Migraine as recognized by the International Headache Society’s International Classification of Headache Disorders, 2nd Edition (ICHD-II), which is the gold standard for diagnosing and classifying types of Migraine and other headache disorders. “Optical Migraine,” is misused all over the place, and depending on who you see us it where, it can be used to mean something different each time you see it. OK, let’s pause for a moment here. Why am I explaining this yet again, when I can just point you to an article that says it better than I ever could? To understand why I’m saying using the term “optical Migraine” is a bad thing, take a look at this article by Teri Robert: Ocular, Optical, and Ophthalmic Migraine.

In short, THAT ARTICLE is the biggest myth I’ve seen!

Here, please imagine a great television announcer saying…

But wait! There’s more…

A link at the bottom of this pathetic excuse for an article takes you to a web site that has a section on… Yes, you guessed it… Migraine types! Here are the types of Migraine this person lists, with the incorrect ones in grey, crossed-out type:

  • Hemiplegic Migraine
  • Basilar Migraine
  • Menstrual Migraine
  • Optical Migraine
  • Ocular Migraine
  • Migraine Aura (I’ll give her this one; it’s Migraine with aura.)
  • Retinal Migraine
  • Abdominal Migraine
  • Complicated Migraine
  • Hormonal Migraine
  • Tension Migraine
  • Transformed Migraine
  • Visual Migraine
  • Cluster Migraine

Six out of 14? I could go on, but why? What I’ve already written is enough to warn anyone that this article and the site it links to aren’t worth the time it would take to click on the link.

This article and site leave me with one question: Why the hell do people who haven’t a clue what they’re talking about insist upon writing articles and web sites?

Seriously!

Best,
Arabella

* Note: I have further reason to question the site this article was on. This morning, I found this blog deactivated. When I asked why, it was because of the link to this article. To keep my blog, I needed to remove the  link. Wow!
Note added 09/04/10

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See the woman to the left? That’s how I felt when I read the title above, the title of an article I came across today. Seriously?!

This article is on a site that calls itself “Migraines & Headaches Health Center.” Again, Seriously?!

There is one good thing about the title -we already know the article is most likely going to be worthless.

Before I proceed, I need to make a confession. I’m out of patience with all the misunderstandings, misconceptions, and outright lies that abound about Migraines on the internet. That means that I’m not in the mood to be even marginally nice and polite about this article. So, I’m just going to come right out and say this — The article sucks, and the person who wrote it is an idiot.

Allow me to quote bits of the article and comment on those bits, please:

The main symptoms of migraines are a pulsating headache accompanied by nausea and diarrhea.

Wrong. This person couldn’t have done any research. Neck pain, vomiting and photophobia are experienced more frequently than diarrhea.

The article then discusses triggers a bit, a section not really very accurate either, then comes the closing paragraph:

Once the person identifies the root of the problem and avoids those situations most people have had reduced migraines and there are positive results. Avoiding certain foods, excess alcohol consumption, intake of caffeine and any such foods that bring on migraines helps a lot. Know what causes your migraines and avoid it and you will be able to live almost without them in future.

Seriously?! Wouldn’t it be nice if it were that simple? There are many, many triggers that cannot be avoided. I’m sure you already know that, but obviously, the idiot who write the article either doesn’t know or just doesn’t care.

Even with the best trigger identification and management, there are millions and millions of use who will NOT “be able to live almost without them in the future.”

Ordinarily, I’d give you the link to the article, but this time, I’m not going to. The coward who write the article has “closed” comments, so we can’t even give him or her any feedback. Some people look to see how many times their articles are read, and typically, when articles are read many times, those who wrote them thing that means the article is good. Since I won’t feed into that kind of thinking on this one, no link.

Please, please, pretty please, if you want to write articles about Migraines, do your research so your articles are accurate. Articles such as this one are no help whatsoever.

Best,
Arabella

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There’s a site that I’ve been watching in horror for a while now. It’s called “Migraine Symptoms Guide,” and is described as “Information on migraine causes, symptoms and treatments.”

One of the articles on it is “What is an Ocular Migraine?” I think we’ve covered before that the term “ocular Migraine” is used fairly commonly around the Internet, BUT when you see it, you’ll never know just by seeing the term what people are talking about. You see, it’s one of those “types of Migraines” that uninformed people talk about, but it’s not an “official” form of Migraine. For the sake of clarity, the gold standard for diagnosing and classifying the various headache disorders, including Migraine, is the International Headache Society’s International Classification of Headache Disorders, Second Edition (ICHD=II).

I held off on writing about this particular article because Teri Robert had posted a couple of comments, and I wanted to see what the response might be. The first time she commented, Teri explained about the classification system and pointed out another error in their article. They had stated that “there is no treatment for these Migraines. The author posted a reply thanking Teri for the clarification and saying, “We have updated the article accordingly. Indeed, they had NOT. All they had done was add a couple of sentences about preventive treatment, preventive treatment without any research to support it at that.

Teri patiently posted a second comment that not only said that they’d missed her main point about “ocular Migraine,” but went so far as to give them a listing of the types of Migraine outlined in the ICHD-II. As I write this, their article remains unchanged.

Enter Teri’s colleague at MyMigraineConnection.com, Nancy Bonk. On Wednesday, Nancy wrote a fantastic post, “Ocular Migraine” – Not, and Why Not. Nancy wrote quite clearly and unequivocally that there really is no such thing as “ocular Migraine” and why using the term is such a bad idea. Yours truly went to the Migraine Symptoms Guide site/blog and posted a comment with a link to Nancy’s blog post.

Now, here’s the kicker! I just read the comments posted to Nancy’s blog. There’s one from the person who wrote the ocular Migraine article! Because of Nancy’s post, she’s “totally reworking the article.” Yes! Good job, Nancy!!

There is, however, something a bit sad about her comment to Nancy. It’s sad that she didn’t heed the TWO comments Teri left her. It’s sad that she totally ignored those, and she only felt moved to do something after I posted the link to Nancy’s blog post.  Was it ego that made her ignore Teri’s comments? Is it such ignorance of the leaders in the field that she didn’t recognize Teri? Whatever the reason was, it’s sad that this article is still online. I can’t tell when it was first written, only that the first comment on it was posted on January 16. If Scarlett, who wrote the article, were genuinely concerned about its inaccuracies, she’d take it down until it was reworked and corrected. AND, if she’s serious about wanting it to be accurate, she’ll do better research this time. Oh, Scarlett, maybe you should try talking to Teri OR reading her book.

Now, I’ve spent a good bit of time talking about ONE article on Migraine Symptoms Guide. When you go to the main page of the site/blog now, you find the article, “Different Types of Migraine.” I wish I could say that article is better, but it’s not. It lists more types of Migraine that aren’t accurate diagnostic terms:

  • Exertion Migraine: That’s not a type of Migraine. Exertion can trigger ANY form of Migraine.
  • Ophthalmoplegic Migraines: Nope. Check the ICHD-II. It’s not there.
  • Basilar Artery Migraine: Has been called Basilar -Type Migraine for 10 years or so now, and the description is inaccurate.
  • Abdominal Migraine: Description is wrong. Says, “This is the only kind of Migraine that doesn’t involve pain in the head.” Absolutely wrong. You can have lots of different types of Migraine without the headache. When that happens, the DESCRIPTIVE term is “acephalgic” or “silent.”

If the people who write this site/blog were docs, we might call them “quacks.” I don’t think they are, so let’s just say they’re pathetically misinformed and don’t know good research from well… I won’t go there.

Best,
Arabella

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WhyI want to remind everyone reading this of   *WHY* I wrote about Squidoo on a blog called Migraine Truth, the purpose of which is, at least in part, to expose sites, products and services that are not in the best interests of the truth about Migraines.

There are entirely too many “lenses” on Squidoo that exist partly, primarily, or solely to sell products such as the Migraine Relief Guide. When I was rating lenses, I was focusing on those that were affiliates selling that “guide,” so I’m going to use it as a prime example of the spam lenses on Squidoo.

From having read it myself and from this review, I know without a doubt that it contains:

  • information that is out-of-date
  • information that is incorrect
  • NO information that can’t be found elsewhere for far fewer $$ or even free

From reading it myself, from that review, and from other bloggers, I also know:

  • The same $37 that is charged for the Migraine Relief Guide could be spent in a book store or on Amazon.com to buy two or three excellent Migraine books that would be FAR superior.
  • Although sites for the Migraine Relief Guide have sections written or appearing to be written by Elizabeth Hayden, she no longer owns and sells the “book.” It is now owned by someone else.

Anyway, enough time spent on Squidoo. I’ve said what needed to be said about in regards to Migraine truths. I’ve passed information along to you, and that’s what’s important. The people at Squidoo couldn’t care less about a few people, and nothing I could ever say would change that.

Tomorrow will find me writing about something else related to the truth about Migraine disease, and that’s as it should be.

Best,
Arabella ♥

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Thanks to my handy-dandy Google news reader, I just came across some important Migraine truth over on MyMigraineConnection.com. Some surprising truth.

You know how we’re always told that generic drugs are the same as the brand name? Well! That’s not necessarily true, and generics from different drug companies can theoretically vary a great deal.

This is something I think everyone who ever uses generic drugs should read: Did You Know Generic Migraine Medications Can Vary? by author and patient advocate Teri Robert.

Best,
Arabella ♥

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